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However, the second mutation only affects the genes present in the cancer cells. Risk of endometrial cancer for women diagnosed with HNPCC-related colorectal carcinoma. ", National Organization for Rare Diseases: "Lynch Syndrome. However, the life expectancy of someone with Lynch syndrome can vary widely depending on various factors such as the type and frequency of cancer they develop, their overall health, and the effectiveness of treatment. Genes (Basel). Lynch syndrome is caused by a fault in one of your genes, which usually works to prevent you getting cancer. Some of the treatment options for Lynch syndrome include: The treatment plan for Lynch syndrome will depend on specific gene mutations, family history, and other factors. Careers. I found out in 2014 that I had lynch syndrome by chance. We have more information aboutplanning a family and inherited cancer risk. If you are concerned about your risk of colorectal cancer or other types of cancer, talk with your health care team. After speaking to the doctor about it all afterwards i mentioned that my sis Our journey begin with my mother being diagnosed with ovarian cancer when I was 20 about 22 yrs ago now. Disclaimer. Last medically reviewed on August 28, 2019. diseases, conditions and tests a-z list what organs are affected by lynch syndrome? ", Dana-Farber Cancer Institute: "Cancer Genetics & Prevention: Lynch Syndrome. We do not know how effective these tests are at preventing womb cancer in women with LS. Lynch syndrome is a hereditary disorder in which the gene is mutated. People who have it have about a 40% to 80% chance of getting colorectal cancer by age 70. Risk-reducingsurgerymeans removing the tissues that are at risk of getting cancer. Yamanaka K, Hamaguchi M, Chomei S, Inoue T, Kono A, Tsujimoto T, Koda Y, Nakai H, Omura A, Inoue T, Yamaguchi M, Sugimoto K, Okada K. Surg Today.